No two brain injuries are alike, that's what makes it so difficult.
Brain injuries change everything, from being properly diagnosed to finding treatment that is effectively tailored specifically to your needs, taking into account your OWN individual injury. There is so much information that isn't currently available and most doctors have little experience in this area.
The first question you or your caregivers should ask your doctor: "Do you have any patients /have you treated anyone with TBI?" If they say "No", or "What is TBI?", then move on to the NEXT doctor.
I had no help and just like any other survivor, from abandonment and losing myself from the reality I once knew. Nothing about brain injury is pretty. Nothing gets better, before it gets worse, which is why it is important to understand the importance of teaming up with one another so we can help ease the most catastrophic event in our life.
In fact the hardest thing is acceptance. Not only by yourself but also the ones around you. This one aspect may be your greatest challenge. However I wish I had someone guiding me, I didn't, I had to figure it out while losing every last speck of who I was to find myself where I am.
My goal for Handle with LoVe is simple: see a need and fill it. And leave no man (woman or child) behind.
I am here to serve you and help you transition to create the new normal we all need to find. I am a resource specialist and though I am not a doctor, lawyer, psychiatrist or counselor, I am a survivor that can guarantee help. If I do not know myself how to break down some obstacles you face, I likely have someone within my network of medical professionals, parents and survivors who can help.
To report abuse and neglect, including self neglect, of an adult, call the your local division of Adult Protective Services.
Thousands of soldiers and veterans are suffering from some level of traumatic brain injury (TBI), mostly as a result of exposure to blast events. See the images, the art, and learn more through National Geographic: Healing Soldiers Art & Stories
UPDATE: ON MARCH 28, 2017, THE NATIONAL ENDOWMENT FOR THE ARTS EXPANDED THE CREATIVE FORCES PROGRAM BY ADDING FOUR CLINICAL SITES TO THE EXISTING SEVEN SITES THAT PROVIDE ARTS THERAPIES FOR SERVICE MEMBERS, VETERANS, AND FAMILIES DEALING WITH TRAUMATIC BRAIN INJURIES (TBI) AND POST-TRAUMATIC STRESS DISORDER (PTSD).
It's amazing and heartwrenching but for those friends and family who just don't "get it", these movies themed around traumatic Brain Injury can help to really paint a picture. Let's face it, people have a hard time believing something they can not see.
I hope the information and videos on this page will help family and friends to understand how the life we once knew is gone and creating the "New Normal" is something we must immediately work towards to give us the best chance of functioning.